Bewildered, but still very sick, over the next couple days I endured. The local hospital did their best to run some tests and figure out what was going on.
The real cause of my swelling, my exhaustion, and my trouble breathing, and this reality of heart trouble had nothing to do with my thyroid. It was an old, complicated medical condition I’ve had for a very long time called an Arteriovenous Malformation. (I’ve linked an article if you want to find out what it is in more detail.) My AVM is a sizeable growth on my left thigh that has been there for about 25+ years. After some searching and attempts at treatment in my mid 20’s, I had kind of given up doing anything about it, other than enduring the regular pain. My treatments hadn’t been covered, and were expensive and difficult to manage on a grocery store job insurance/paycheck.
But as the local hospital was bundling me up and sending me to the big city hospital, I was discovering that all this time, the bad connections in my growth had been putting strain on my heart, and this was what was sending me into heart failure.
I settled into my new room, with the cascade of doctors and residents that comes from being in a teaching hospital, and began the long road back to some semblance of health. The first thing I had to do was pee.
Seriously. Apparently all this swelling on my body was not fat as I had thought, but as often goes along with heart failure, it was water. With lots of medicine, I ended up 64 pounds lighter! And at this slimmer, svelter size I was finally able to undergo the definitive testing that would allow the doctors to take measurements and do scans that would pinpoint what they needed to do and where to go next. The scans and relevant indignities undergone, they sent me home just in time for thanksgiving. (And oh was I thankful.)
But those 13 days in 2 hospitals gave me a lot of time to think, and I wanted to share some of these thoughts with my friends, colleagues, clients, and dear readers in general–you’ll find some of those in the next post!